My friends compare this community to the Hunger Games. Our 'unlucky' drawcard landed us together. We need our community & the odds to ever be in our favour.
Not PTSD – Post-Traumatic Growth
You've heard of PTSD - what about Post Traumatic Growth? It changed my life with a child with a life limiting condition & made me functional when he passed.
Sleep tips to cope with your child in hospital.
These are Luke and I's sleep tips to cope with being in hospital. Matthew was in hospital 50% of the time, Sleep is super important to cope with everything life as a parent of a medically fragile child can throw at you.
10 Ways to Connect With Your Friend After They Have Lost Their Child
The first thing to know about connecting with a friend when they have lost their child, is that everyone is different. Loosing a child is most people's worst nightmare. So when they know someone has lost their's it can be difficult to know how to reach out. Everyone is different. You know this. Every person … Continue reading 10 Ways to Connect With Your Friend After They Have Lost Their Child
A great therapist – Celeste Clancy
Finding a great therapist for your child is sometimes hard work! Often there is a element of not having a choice. Location, the therapist's specialisations all play a part. An Occupational Therapist At Work - Matthew was very happy. Our first experience Our first community based therapist was assigned to us at random, due to … Continue reading A great therapist – Celeste Clancy
Grief while facing a New Year
Who knew as a kid that a New Year would be a cause of further pain & grief? The New Year is coming, and our lost loved one, won't be in it While grieving as I learned to take a day at a time, I was surprised to realise that the idea of New Years … Continue reading Grief while facing a New Year
Relief while grieving a disabled child
Feeling relief while grieving a disabled child seems like a cold and heartless thing. But when you have witnessed your child in almost constant pain for long enough, this may happen to you. If it hasn't happened to you, keep in mind that everyday is new, and that emotions and feeling are all over the … Continue reading Relief while grieving a disabled child
Christmas in hospital with other children
This Christmas wouldn't be in hospital. I suddenly knew why some people hate Christmas. I could be depressed, or I could focus on the good.
Medical Definitions – From a Carer
Here are my medical definitions, adding some detail from my experiences. As carers and parents of children with medical conditions and disabilities we learn lots of new terminology. We don't always catch the meaning the first time we hear them. Medical Terms for the Special Needs Parent #complexmedicalcondition Acute - A sudden or severe episode/illness … Continue reading Medical Definitions – From a Carer
Exercise in the hospital
Doing many admissions with Matthew, exercise in the hospital was the only option. Special needs mum's need to take care of themselves & exercise is a great step!
Caring for yourself as a Carer 