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Category: Our Story

sad little boy sitting in a window rain pouring down outside - grief for children

Grief For Children Who Have Lost a Sibling

11th Jun 202024th Feb 2022Leave a comment

Supporting grief for children, especially your own children is hard-work. Children see death differently, depending on their age.

A teddy bear and plaster handprints & footprints on a hospital room tray, dad in the background hospital bed, feeling child loss for the first time

Feeling Child Loss

7th May 202024th Feb 2022Leave a comment

Child loss is one of the most difficult things I have ever had to carry with me. Although when I reflect I also know that watching my child suffer was THE most difficult thing.

grief, complex medical condition, palliative care

A day at a time – Coping with grief

21st Mar 202024th Feb 2022Leave a comment

My name is Abigail Burton. This is my take on coping with grief. In March (2019) my husband and I lost our middle son, Matthew Noah Michael Burton. He was just 5 years and 11 days old. Matthew was born with a complex medical condition. Which included things like chronic lung disease, hypotonia, and club … Continue reading A day at a time – Coping with grief

Eucalyptus bush burning - Knowing my limits (in intense situations)

Knowing My Limits

15th Feb 202024th Feb 2022Leave a comment

As a carer, I am often stretched beyond my imaging. But would I know when I had reached my limits? During the bushfires, I learned that answer.

Rocky nearly dry creek in the bush - Not unlike the hunger games, where building community was the key

Building Community as a Carer – Why do my friends call this life The Hunger Games?

23rd Dec 201924th Feb 2022Leave a comment

My friends compare this community to the Hunger Games. Our 'unlucky' drawcard landed us together. We need our community & the odds to ever be in our favour.

Champagne and sparkly gold glasses read for celebrating a new year - except for grief

Grief while facing a New Year

27th Nov 201924th Feb 2022Leave a comment

Who knew as a kid that a New Year would be a cause of further pain & grief? The New Year is coming, and our lost loved one, won't be in it While grieving as I learned to take a day at a time, I was surprised to realise that the idea of New Years … Continue reading Grief while facing a New Year

Man laying in green grass with while daisies and some yellow dandelion - he is laying arms and legs apart head back, looking relieved - perhaps experiencing relief while greiving

Relief while grieving a disabled child

3rd Nov 201924th Feb 2022Leave a comment

Feeling relief while grieving a disabled child seems like a cold and heartless thing. But when you have witnessed your child in almost constant pain for long enough, this may happen to you. If it hasn't happened to you, keep in mind that everyday is new, and that emotions and feeling are all over the … Continue reading Relief while grieving a disabled child

Dealing with death after you've lost a child - a weathered timber engraved with "In Memory"

Dealing with Death – after you have lost a Child

5th Sep 201924th Feb 20221 Comment

I never considered before what dealing with death after I lost Matthew would be like. It's Father's day.Today I am mourning another little person gone too soon. I absolutely 100% knew dealing with death of children close to me would happen. But I didn't know how it was going to affect me. Another blow Yesterday … Continue reading Dealing with Death – after you have lost a Child

Mother holding a child with a rare condition on oxygen with IV lines running to under his white blanket swaddle

Caring for a Child with a Rare Condition

3rd Sep 201924th Feb 20221 Comment

We didn't know we were living with a child with a rare condition. Where we started; Our first peek into the world that is fragile & complex medical conditions, was when Matthew was just 9 weeks old. We had been at our parent's for dinner. I gave him a bottle/feed before we put him in … Continue reading Caring for a Child with a Rare Condition

Confident strong woman (A special needs mum?), standing at the top of a hill, silhouetted against only clouds below and sky above.

Not Just a Special Needs Mum – Getting Yourself Back

22nd Aug 201924th Feb 2022Leave a comment

The day I realised that being a 'Special Needs Mum' was part of my identity was an interesting moment. I was on the other side of the world, in Cleveland, Ohio. I had packed myself up and taken myself to the other side of the world, to work on me. To learn from someone that … Continue reading Not Just a Special Needs Mum – Getting Yourself Back

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