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Caring for Carers – tips, tricks and stories by a special needs mum for carers of children with complex medical conditions and other disabilities and needs

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Category: Our Story

sad little boy sitting in a window rain pouring down outside - grief for children

Grief For Children Who Have Lost a Sibling

11th June 202011th June 2020Leave a comment

Supporting grief for children, especially your own children is hard-work. Children see death differently, depending on their age.

A teddy bear and plaster handprints & footprints on a hospital room tray, dad in the background hospital bed, feeling child loss for the first time

Feeling Child Loss

7th May 202030th April 2020Leave a comment

Child loss is one of the most difficult things I have ever had to carry with me. Although when I reflect I also know that watching my child suffer was THE most difficult thing.

grief, complex medical condition, palliative care

A day at a time – Coping with grief

21st March 202021st March 2020Leave a comment

My name is Abigail Burton. This is my take on coping with grief. In March (2019) my husband and I lost our middle son, Matthew Noah Michael Burton. He was just 5 years and 11 days old. Matthew was born with a complex medical condition. Which included things like chronic lung disease, hypotonia, and club … Continue reading A day at a time – Coping with grief

Eucalyptus bush burning - Knowing my limits (in intense situations)

Knowing My Limits

15th February 202018th March 2020Leave a comment

As a carer, I am often stretched beyond my imaging. But would I know when I had reached my limits? During the bushfires, I learned that answer.

Rocky nearly dry creek in the bush - Not unlike the hunger games, where building community was the key

Building Community as a Carer – Why do my friends call this life The Hunger Games?

23rd December 201929th December 2019Leave a comment

My friends compare this community to the Hunger Games. Our 'unlucky' drawcard landed us together. We need our community & the odds to ever be in our favour.

Champagne and sparkly gold glasses read for celebrating a new year - except for grief

Grief while facing a New Year

27th November 201930th November 2019Leave a comment

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Who knew as a kid that a New Year would be a cause of further pain & grief? The New Year is coming, and our lost loved one, won't be in it While grieving as I learned to take a day at a time, I was surprised to realise that the idea of New Years … Continue reading Grief while facing a New Year

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