Here are my medical definitions, adding some detail from my experiences. As carers and parents of children with medical conditions and disabilities we learn lots of new terminology. We don't always catch the meaning the first time we hear them. Medical Terms for the Special Needs Parent #complexmedicalcondition Acute - A sudden or severe episode/illness … Continue reading Medical Definitions – From a Carer
Being referred to palliative care for a child can be terrifying, but actually their roll is to help their patients & families get the most out of life.
The first time I attended a Syndromes Without A Name – Australia event, I’ll admit I wasn’t sure it was the place for a family like ours, living with a severely disabled child with a life limiting condition.
She has travelled the world and the country to get Noah cutting edge treatments, and all the while working on herself, finding a way to balance her own self-care and empowering people to live their best life.