Category: Recommended Resources
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Supplements for Energy – My Tip Especially if you’re running on empty

Supplements for energy? Unless we make changes to the sleep we get, exercise we do, the stress we feel or what we put in our body nothing changes
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Very Special Kids for Palliative Care

Very Special Kids cares for children with life-threatening conditions by providing a children’s hospice and professional family support services.
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A great therapist – Celeste Clancy

Finding a great therapist for your child is sometimes hard work! Often there is a element of not having a choice. Location, the therapist’s specialisations all play a part. Our first experience Our first community based therapist was assigned to us at random, due to our location. None of my interactions with her went well.…
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Medical Definitions – From a Carer

Here are my medical definitions, adding some detail from my experiences. As carers and parents of children with medical conditions and disabilities we learn lots of new terminology. We don’t always catch the meaning the first time we hear them. Acute – A sudden or severe episode/illness that comes out of nowhere. I often said…
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Palliative Care for a Child

Being referred to palliative care for a child can be terrifying, but actually their roll is to help their patients & families get the most out of life.
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SWAN – Australia

The first time I attended a Syndromes Without A Name – Australia event, I’ll admit I wasn’t sure it was the place for a family like ours, living with a severely disabled child with a life limiting condition.
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Flexible Freedom

She has travelled the world and the country to get Noah cutting edge treatments, and all the while working on herself, finding a way to balance her own self-care and empowering people to live their best life.