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Caring for Carers – tips, tricks and stories by a special needs mum for carers of children with complex medical conditions and other disabilities and needs

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Man laying in green grass with while daisies and some yellow dandelion - he is laying arms and legs apart head back, looking relieved - perhaps experiencing relief while greiving

Relief while grieving a disabled child

3rd November 201920th November 2019Leave a comment

Feeling relief while grieving a disabled child seems like a cold and heartless thing. But when you have witnessed your child in almost constant pain for long enough, this may happen to you. If it hasn't happened to you, keep in mind that everyday is new, and that emotions and feeling are all over the … Continue reading Relief while grieving a disabled child

Dealing with death after you've lost a child - a weathered timber engraved with "In Memory"

Dealing with Death – after you have lost a Child

5th September 20195th September 20191 Comment

I never considered before what dealing with death after I lost Matthew would be like. It's Father's day.Today I am mourning another little person gone too soon. I absolutely 100% knew dealing with death of children close to me would happen. But I didn't know how it was going to affect me. Another blow Yesterday … Continue reading Dealing with Death – after you have lost a Child

Mother holding a child with a rare condition on oxygen with IV lines running to under his white blanket swaddle

Caring for a Child with a Rare Condition

3rd September 20193rd September 20191 Comment

We didn't know we were living with a child with a rare condition. Where we started; Our first peek into the world that is fragile & complex medical conditions, was when Matthew was just 9 weeks old. We had been at our parent's for dinner. I gave him a bottle/feed before we put him in … Continue reading Caring for a Child with a Rare Condition

Confident strong woman (A special needs mum?), standing at the top of a hill, silhouetted against only clouds below and sky above.

Not Just a Special Needs Mum – Getting Yourself Back

22nd August 201922nd August 2019Leave a comment

The day I realised that being a 'Special Needs Mum' was part of my identity was an interesting moment. I was on the other side of the world, in Cleveland, Ohio. I had packed myself up and taken myself to the other side of the world, to work on me. To learn from someone that … Continue reading Not Just a Special Needs Mum – Getting Yourself Back

anxiety as a grieving mum

Processing Anxiety as a Grieving Mum

6th August 2019Leave a comment

Anxiety is part of my journey as a grieving mum. It is new an unfamiliar, just like learning to live with the death of my child. Today I went to a kids indoor climbing place with a playground on the side. Luke took us there with our 3 1/2 year old Mackenzie, to get out … Continue reading Processing Anxiety as a Grieving Mum

Coping with Grief

A Day at a Time; Coping with Grief

24th July 201925th July 20191 Comment

Coping with the grief of losing a child.I was honoured by a request to share my experience with Christina and her community at http://www.thisisreallifemama.com Christina is a licensed therapist Christina is a mental health professional, she also works from home to care for her children. She is a licensed therapist in California and still completes … Continue reading A Day at a Time; Coping with Grief

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