With a child who had long stays in hospital, the cost of take away & coffee, parking, added up quickly. We learned to save money cooking in hospital.
Category: Tips for making it better
Special Needs Parents – Hot Marriage Secrets
Special Needs Parents & Hot Marriage Secrets? Are you crazy? I can see the mum now, totally worn out, hasn't thought about dressing up & going out in months. "My marriage hasn't been hot since our honeymoon. Let alone since our special needs child was born." Sure, and you're not alone. Marriage Breakdown as Special … Continue reading Special Needs Parents – Hot Marriage Secrets
Relocating for our Medically Complex Child
Relocating for our medically complex child was never just about him. It was never just about Matthew. Between having the idea and actually moving, was around 6 - 8 weeks. Such a strange thing to happen, living in your big beautiful home that you once picked out the colours, tap ware and furnishings for. Then … Continue reading Relocating for our Medically Complex Child
Mental Health & Nutrition for Special Needs Mums
I don't have time to think about nutrition. It's not possible to do mental health & nutrition for special needs mums! I have heard it literally hundreds of times. I was the same for the first few years of Matthew's life. But something has to give. How prepared are you for the cost of not … Continue reading Mental Health & Nutrition for Special Needs Mums
Managing caring, the siblings, husband, household and working on the side.
Quit now and ignore it all right? That list is impossible. Well, managing caring is trade-offs, but a with some work, trial and error, you can keep your priorities straight.
Flying with a Medically Fragile Child
Flying with a medically fragile and disabled child is a unique and sometimes tricky experience. Matthew made a few flights. I will say, it takes a few more steps than organising your average trip. We made the effort to make it happen, and I am so glad we did. Matthew saw 4 different Australian states, … Continue reading Flying with a Medically Fragile Child
A Special Needs Mum beating the isolation
For me as a special needs mum, the feelings of anger, frustration, loneliness and isolation were definitely part of every admission, even at times every stint at home. Sometimes even more so. I am discovering more and more how that effected me during Matthew's life. I knew they effected me, but the time to really … Continue reading A Special Needs Mum beating the isolation
One life saving step
I had been having micro-sleeps at the wheel. It happened a lot more often than I'd like to admit. Mackenzie, on top of not sleeping, hated her car seat, so I could never pull over and have a power nap, so I pushed on so many times. Feeling squeezed, like there was no other way to be there for my family.
Preparing for a funeral financially
"How do people pay for their child's funeral?"
...So we began to get creative. Going broke or bankrupt wasn't part of our plan.