Quit now and ignore it all right?That list is impossible.Well managing caring is trade-offs, but a with some work, trial and error, you can keep your priorities straight. When Matthew came along, I was running a fledgling bookkeeping practice, from home. I had started it so I didn't have to go back and work admin … Continue reading Managing caring, the siblings, husband, household and working on the side.
Flying with a medically fragile and disabled child is a unique and sometimes tricky experience. Matthew made a few flights. I will say, it takes a few more steps than organising your average trip. We made the effort to make it happen, and I am so glad we did. Matthew saw 4 different Australian states, … Continue reading Flying with a Medically Fragile Child
For me as a special needs mum, the feelings of anger, frustration, loneliness and isolation were definitely part of every admission, even at times every stint at home. Sometimes even more so. I am discovering more and more how that effected me during Matthew's life. I knew they effected me, but the time to really … Continue reading A Special Needs Mum beating the isolation
I had been having micro-sleeps at the wheel. It happened a lot more often than I'd like to admit. Mackenzie, on top of not sleeping, hated her car seat, so I could never pull over and have a power nap, so I pushed on so many times. Feeling squeezed, like there was no other way to be there for my family.
"How do people pay for their child's funeral?"
...So we began to get creative. Going broke or bankrupt wasn't part of our plan.