For me as a special needs mum, the feelings of anger, frustration, loneliness and isolation were definitely part of every admission, even at times every stint at home. Sometimes even more so. I am discovering more and more how that effected me during Matthew's life. I knew they effected me, but the time to really … Continue reading A Special Needs Mum beating the isolation
I cannot comprehend (at this moment) living with a pain that won't ever go away. That has it's own currents like an ocean.
In my case at least there is so much more going on sub-consciously than you realise.
"How do people pay for their child's funeral?"
Not long ago, weeks after the funeral a non-descriptive letter arrived in the mail. I got it out of the mail box and Luke gave me a sideways look, he had been trying to check the mail first, ever since they had told us we would receive the death certificate in the mail. I probably … Continue reading The letter in the mail
The first time I attended a Syndromes Without A Name – Australia event, I’ll admit I wasn’t sure it was the place for a family like ours, living with a severely disabled child with a life limiting condition.
...So we began to get creative. Going broke or bankrupt wasn't part of our plan.
Who am I? My name is Abigail Burton, I am 29. My husband, Luke and I have been married for nearly 9 years. Our children are Shane 7, Matthew who was 5, Mackenzie 3 & Baby Burton who would be 1. I was a happily running a bookkeeping practice from home. Unfortunately, I had to … Continue reading Why A Blog? – About Us
She has travelled the world and the country to get Noah cutting edge treatments, and all the while working on herself, finding a way to balance her own self-care and empowering people to live their best life.
The Palliative Care nurse asked, as she had every time we spoke, "How are you doing?"
Caring for yourself as a Carer 