Tag: palliative care
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Medical Definitions – From a Carer
Here are my medical definitions, adding some detail from my experiences. As carers and parents of children with medical conditions and disabilities we learn lots of new terminology. We don’t always catch the meaning the first time we hear them. Acute – A sudden or severe episode/illness that comes out of nowhere. I often said…
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Save Money by Cooking in Hospital
With a child who had long stays in hospital, the cost of take away & coffee, parking, added up quickly. We learned to save money cooking in hospital.
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Palliative Care for a Child
Being referred to palliative care for a child can be terrifying, but actually their roll is to help their patients & families get the most out of life.
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Special Needs Parents – Hot Marriage Secrets
Special Needs Parents & Hot Marriage Secrets? Are you crazy? I can see the mum now, totally worn out, hasn’t thought about dressing up & going out in months. “My marriage hasn’t been hot since our honeymoon. Let alone since our special needs child was born.“ Sure, and you’re not alone. Marriage Breakdown as Special…
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Dealing with Death – after you have lost a Child
I never considered before what dealing with death after I lost Matthew would be like. It’s Father’s day.Today I am mourning another little person gone too soon. I absolutely 100% knew dealing with death of children close to me would happen. But I didn’t know how it was going to affect me. Another blow Yesterday…
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Relocating for our Medically Complex Child
Relocating for our medically complex child was never just about him. It was never just about Matthew. Between having the idea and actually moving, was around 6 – 8 weeks. Such a strange thing to happen, living in your big beautiful home that you once picked out the colours, tap ware and furnishings for. Then…
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Mental Health & Nutrition for Special Needs Mums
I don’t have time to think about nutrition. It’s not possible to do mental health & nutrition for special needs mums! I have heard it literally hundreds of times. I was the same for the first few years of Matthew’s life. But something has to give. How prepared are you for the cost of not…
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Managing caring, the siblings, husband, household and working on the side.
Quit now and ignore it all right? That list is impossible. Well, managing caring is trade-offs, but a with some work, trial and error, you can keep your priorities straight.
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A Day at a Time; Coping with Grief
Coping with the grief of losing a child.I was honoured by a request to share my experience with Christina and her community at www.thisisreallifemama.com Christina is a licensed therapist Christina is a mental health professional, she also works from home to care for her children. She is a licensed therapist in California and still completes…
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Flying with a Medically Fragile Child
Flying with a medically fragile and disabled child is a unique and sometimes tricky experience. Matthew made a few flights. I will say, it takes a few more steps than organising your average trip. We made the effort to make it happen, and I am so glad we did. Matthew saw 4 different Australian states,…
The Savage Self-care Coach 