Tag: palliative care
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Palliative Care for a Child
Being referred to palliative care for a child can be terrifying, but actually their roll is to help their patients & families get the most out of life.
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Special Needs Parents – Hot Marriage Secrets
Special Needs Parents & Hot Marriage Secrets? Are you crazy? I can see the mum now, totally worn out, hasn’t thought about dressing up & going out in months. “My marriage hasn’t been hot since our honeymoon. Let alone since our special needs child was born.“ Sure, and you’re not alone. Marriage Breakdown as Special…
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Dealing with Death – after you have lost a Child
I never considered before what dealing with death after I lost Matthew would be like. It’s Father’s day.Today I am mourning another little person gone too soon. I absolutely 100% knew dealing with death of children close to me would happen. But I didn’t know how it was going to affect me. Another blow Yesterday…
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Relocating for our Medically Complex Child
Relocating for our medically complex child was never just about him. It was never just about Matthew. Between having the idea and actually moving, was around 6 – 8 weeks. Such a strange thing to happen, living in your big beautiful home that you once picked out the colours, tap ware and furnishings for. Then…
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A Day at a Time; Coping with Grief
Coping with the grief of losing a child.I was honoured by a request to share my experience with Christina and her community at www.thisisreallifemama.com Christina is a licensed therapist Christina is a mental health professional, she also works from home to care for her children. She is a licensed therapist in California and still completes…
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Flying with a Medically Fragile Child
Flying with a medically fragile and disabled child is a unique and sometimes tricky experience. Matthew made a few flights. I will say, it takes a few more steps than organising your average trip. We made the effort to make it happen, and I am so glad we did. Matthew saw 4 different Australian states,…
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Pain
I cannot comprehend (at this moment) living with a pain that won’t ever go away. That has it’s own currents like an ocean.
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The letter in the mail
Not long ago, weeks after the funeral a non-descriptive letter arrived in the mail. I got it out of the mail box and Luke gave me a sideways look, he had been trying to check the mail first, ever since they had told us we would receive the death certificate in the mail. I probably…
