Tag: rare condition

• SWAN – Australia

  

  The first time I attended a Syndromes Without A Name – Australia event, I’ll admit I wasn’t sure it was the place for a family like ours, living with a severely disabled child with a life limiting condition.

  Abigail Burton

  3rd May 2019

  Recommended Resources

  carer, complex medical condition, palliative care, rare condition, syndromes without a name

• Hospital Cooking

  

  …So we began to get creative. Going broke or bankrupt wasn’t part of our plan.

  Abigail Burton

  24th Apr 2019

  Tips for making it better

  complex medical condition, finances, grief, hospital, palliative care, rare condition

• Flexible Freedom

  

  She has travelled the world and the country to get Noah cutting edge treatments, and all the while working on herself, finding a way to balance her own self-care and empowering people to live their best life.

  Abigail Burton

  16th Apr 2019

  Recommended Resources

  carer, complex medical condition, flexible freedom, grief, palliative care, rare condition