Very Special Kids cares for children with life-threatening conditions by providing a children’s hospice and professional family support services.
Tag: complex medical condition
Knowing My Limits
As a carer, I am often stretched beyond my imaging. But would I know when I had reached my limits? During the bushfires, I learned that answer.
Building Community as a Carer – Why do my friends call this life The Hunger Games?
My friends compare this community to the Hunger Games. Our 'unlucky' drawcard landed us together. We need our community & the odds to ever be in our favour.
Not PTSD – Post-Traumatic Growth
You've heard of PTSD - what about Post Traumatic Growth? It changed my life with a child with a life limiting condition & made me functional when he passed.
Sleep tips to cope with your child in hospital.
These are Luke and I's sleep tips to cope with being in hospital. Matthew was in hospital 50% of the time, Sleep is super important to cope with everything life as a parent of a medically fragile child can throw at you.
10 Ways to Connect With Your Friend After They Have Lost Their Child
The first thing to know about connecting with a friend when they have lost their child, is that everyone is different. Loosing a child is most people's worst nightmare. So when they know someone has lost their's it can be difficult to know how to reach out. Everyone is different. You know this. Every person … Continue reading 10 Ways to Connect With Your Friend After They Have Lost Their Child