Tag: complex medical condition
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How to Save Money, 9 Tips for Medical Families
How to save money. If you’re like me with the hospital admissions, therapies & appointments, I don’t need to save money, there just isn’t enough of it. Or so I thought
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Very Special Kids for Palliative Care
Very Special Kids cares for children with life-threatening conditions by providing a children’s hospice and professional family support services.
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Knowing My Limits
As a carer, I am often stretched beyond my imaging. But would I know when I had reached my limits? During the bushfires, I learned that answer.
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Building Community as a Carer – Why do my friends call this life The Hunger Games?
My friends compare this community to the Hunger Games. Our ‘unlucky’ drawcard landed us together. We need our community & the odds to ever be in our favour.
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Not PTSD – Post-Traumatic Growth
You’ve heard of PTSD – what about Post Traumatic Growth? It changed my life with a child with a life limiting condition & made me functional when he passed.
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10 Ways to Connect With Your Friend After They Have Lost Their Child
The first thing to know about connecting with a friend when they have lost their child, is that everyone is different. Everyone is different. You know this. Every person went through a different journey – that started long before the loss of their child – to bring them to the point that you see them…
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A great therapist – Celeste Clancy
Finding a great therapist for your child is sometimes hard work! Often there is a element of not having a choice. Location, the therapist’s specialisations all play a part. Our first experience Our first community based therapist was assigned to us at random, due to our location. None of my interactions with her went well.…
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Grief while facing a New Year
Who knew as a kid that a New Year would be a cause of further pain & grief? While grieving as I learned to take a day at a time, I was surprised to realise that the idea of New Years & Christmas did intensify the grief. I had heard of people who hated Christmas.…
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Relief while grieving a disabled child
Feeling relief while grieving a disabled child seems like a cold and heartless thing. But when you have witnessed your child in almost constant pain for long enough, this may happen to you. If it hasn’t happened to you, keep in mind that everyday is new, and that emotions and feeling are all over the…
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Medical Definitions – From a Carer
Here are my medical definitions, adding some detail from my experiences. As carers and parents of children with medical conditions and disabilities we learn lots of new terminology. We don’t always catch the meaning the first time we hear them. Acute – A sudden or severe episode/illness that comes out of nowhere. I often said…
The Savage Self-care Coach 