Ultimately respite for special needs children means someone else will take over caring for your child so you can take a well deserved break from caring responsibilities. The saying 'It takes a village to raise a child' is even more true for a special needs child.
Supporting grief for children, especially your own children is hard-work. Children see death differently, depending on their age.
Child loss is one of the most difficult things I have ever had to carry with me. Although when I reflect I also know that watching my child suffer was THE most difficult thing.
Anticipatory grief: "A feeling of grief occurring before an impending loss." The grief process I wanted to describe started just after Matthew was born.
Very Special Kids cares for children with life-threatening conditions by providing a children’s hospice and professional family support services.
You've heard of PTSD - what about Post Traumatic Growth? It changed my life with a child with a life limiting condition & made me functional when he passed.