I don't have time to think about nutrition. It's not possible to do mental health & nutrition for special needs mums! I have heard it literally hundreds of times. I was the same for the first few years of Matthew's life. But something has to give. How prepared are you for the cost of not … Continue reading Mental Health & Nutrition for Special Needs Mums
Quit now and ignore it all right? That list is impossible. Well, managing caring is trade-offs, but a with some work, trial and error, you can keep your priorities straight.
Coping with the grief of losing a child.I was honoured by a request to share my experience with Christina and her community at http://www.thisisreallifemama.com Christina is a licensed therapist Christina is a mental health professional, she also works from home to care for her children. She is a licensed therapist in California and still completes … Continue reading A Day at a Time; Coping with Grief
Flying with a medically fragile and disabled child is a unique and sometimes tricky experience. Matthew made a few flights. I will say, it takes a few more steps than organising your average trip. We made the effort to make it happen, and I am so glad we did. Matthew saw 4 different Australian states, … Continue reading Flying with a Medically Fragile Child
For me as a special needs mum, the feelings of anger, frustration, loneliness and isolation were definitely part of every admission, even at times every stint at home. Sometimes even more so. I am discovering more and more how that effected me during Matthew's life. I knew they effected me, but the time to really … Continue reading A Special Needs Mum beating the isolation
I cannot comprehend (at this moment) living with a pain that won't ever go away. That has it's own currents like an ocean.
In my case at least there is so much more going on sub-consciously than you realise.
"How do people pay for their child's funeral?"
Not long ago, weeks after the funeral a non-descriptive letter arrived in the mail. I got it out of the mail box and Luke gave me a sideways look, he had been trying to check the mail first, ever since they had told us we would receive the death certificate in the mail. I probably … Continue reading The letter in the mail
The first time I attended a Syndromes Without A Name – Australia event, I’ll admit I wasn’t sure it was the place for a family like ours, living with a severely disabled child with a life limiting condition.
Caring for yourself as a Carer 