Feeling relief while grieving a disabled child seems like a cold and heartless thing. But when you have witnessed your child in almost constant pain for long enough, this may happen to you. If it hasn't happened to you, keep in mind that everyday is new, and that emotions and feeling are all over the … Continue reading Relief while grieving a disabled child
This Christmas wouldn't be in hospital. I suddenly knew why some people hate Christmas. I could be depressed, or I could focus on the good.
Here are my medical definitions, adding some detail from my experiences. As carers and parents of children with medical conditions and disabilities we learn lots of new terminology. We don't always catch the meaning the first time we hear them. Medical Terms for the Special Needs Parent #complexmedicalcondition Acute - A sudden or severe episode/illness … Continue reading Medical Definitions – From a Carer
Doing many admissions with Matthew, exercise in the hospital was the only option. Special needs mum's need to take care of themselves & exercise is a great step!
With a child who had long stays in hospital, the cost of take away & coffee, parking, added up quickly. We learned to save money cooking in hospital.
Being referred to palliative care for a child can be terrifying, but actually their roll is to help their patients & families get the most out of life.