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Tag: complex medical condition

Yellow and white handfolded lantern hung by a sliver pipe cleaners, snowy/spider web type decorations hang behind with tiny lights sparkling, the kind that you might like to share with a child having christmas in hospital.

Christmas in hospital with other children

3rd Nov 201924th Feb 2022

This Christmas wouldn't be in hospital. I suddenly knew why some people hate Christmas. I could be depressed, or I could focus on the good.

Word cloud in 4 different colours. Contains words like bradycardia, aphasia, tube, bleach, barium, afebrile, anaesthetic

Medical Definitions – From a Carer

29th Oct 201924th Feb 2022Leave a comment

Here are my medical definitions, adding some detail from my experiences. As carers and parents of children with medical conditions and disabilities we learn lots of new terminology. We don't always catch the meaning the first time we hear them. Medical Terms for the Special Needs Parent #complexmedicalcondition Acute - A sudden or severe episode/illness … Continue reading Medical Definitions – From a Carer

Lady doing yoga - taking time to exercise, especially with a child in hospital has many benefits.

Exercise in the hospital

4th Oct 201924th Feb 2022Leave a comment

Doing many admissions with Matthew, exercise in the hospital was the only option. Special needs mum's need to take care of themselves & exercise is a great step!

Saved money by cooking in hospital. Two parents and two children, sitting at a dinner table with a home prepared salad.

Save Money by Cooking in Hospital

2nd Oct 201924th Feb 2022Leave a comment

With a child who had long stays in hospital, the cost of take away & coffee, parking, added up quickly. We learned to save money cooking in hospital.

Family together enjoying a day out in the sunshine, sitting on a park bench, with their child in palliative care

Palliative Care for a Child

23rd Sep 201924th Feb 2022Leave a comment

Being referred to palliative care for a child can be terrifying, but actually their roll is to help their patients & families get the most out of life.

Sunset, Hotel in Hawaii for hot marriage secrets, not just for special needs parents

Special Needs Parents – Hot Marriage Secrets

12th Sep 201924th Feb 2022Leave a comment

Special Needs Parents & Hot Marriage Secrets? Are you crazy? I can see the mum now, totally worn out, hasn't thought about dressing up & going out in months. "My marriage hasn't been hot since our honeymoon. Let alone since our special needs child was born." Sure, and you're not alone.  Marriage Breakdown as Special … Continue reading Special Needs Parents – Hot Marriage Secrets

Dealing with death after you've lost a child - a weathered timber engraved with "In Memory"

Dealing with Death – after you have lost a Child

5th Sep 201924th Feb 20221 Comment

I never considered before what dealing with death after I lost Matthew would be like. It's Father's day.Today I am mourning another little person gone too soon. I absolutely 100% knew dealing with death of children close to me would happen. But I didn't know how it was going to affect me. Another blow Yesterday … Continue reading Dealing with Death – after you have lost a Child

Mother holding a child with a rare condition on oxygen with IV lines running to under his white blanket swaddle

Caring for a Child with a Rare Condition

3rd Sep 201924th Feb 20221 Comment

We didn't know we were living with a child with a rare condition. Where we started; Our first peek into the world that is fragile & complex medical conditions, was when Matthew was just 9 weeks old. We had been at our parent's for dinner. I gave him a bottle/feed before we put him in … Continue reading Caring for a Child with a Rare Condition

house keys and a man's hand about to sign something with a calligraphy pen - perhaps a rental agreement to relocate for a special needs child

Relocating for our Medically Complex Child

28th Aug 201924th Feb 2022Leave a comment

Relocating for our medically complex child was never just about him. It was never just about Matthew. Between having the idea and actually moving, was around 6 - 8 weeks. Such a strange thing to happen, living in your big beautiful home that you once picked out the colours, tap ware and furnishings for. Then … Continue reading Relocating for our Medically Complex Child

Confident strong woman (A special needs mum?), standing at the top of a hill, silhouetted against only clouds below and sky above.

Not Just a Special Needs Mum – Getting Yourself Back

22nd Aug 201924th Feb 2022Leave a comment

The day I realised that being a 'Special Needs Mum' was part of my identity was an interesting moment. I was on the other side of the world, in Cleveland, Ohio. I had packed myself up and taken myself to the other side of the world, to work on me. To learn from someone that … Continue reading Not Just a Special Needs Mum – Getting Yourself Back

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