Tag: palliative care
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A Special Needs Mum beating the isolation
For me as a special needs mum, the feelings of anger, frustration, loneliness and isolation were definitely part of every admission, even at times every stint at home. Sometimes even more so. I am discovering more and more how that effected me during Matthew’s life. I knew they effected me, but the time to really…
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Pain
I cannot comprehend (at this moment) living with a pain that won’t ever go away. That has it’s own currents like an ocean.
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The letter in the mail
Not long ago, weeks after the funeral a non-descriptive letter arrived in the mail. I got it out of the mail box and Luke gave me a sideways look, he had been trying to check the mail first, ever since they had told us we would receive the death certificate in the mail. I probably…
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SWAN – Australia
The first time I attended a Syndromes Without A Name – Australia event, I’ll admit I wasn’t sure it was the place for a family like ours, living with a severely disabled child with a life limiting condition.
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Why A Blog? – About Us
Who am I? My name is Abigail Burton, I am 29. My husband, Luke and I have been married for nearly 9 years. Our children are Shane 7, Matthew who was 5, Mackenzie 3 & Baby Burton who would be 1. I was a happily running a bookkeeping practice from home. Unfortunately, I had to…
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Flexible Freedom
She has travelled the world and the country to get Noah cutting edge treatments, and all the while working on herself, finding a way to balance her own self-care and empowering people to live their best life.
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“It isn’t as bad as I thought it would be”?
The Palliative Care nurse asked, as she had every time we spoke, “How are you doing?”
The Savage Self-care Coach 