Tag: medically fragile child
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Grief For Children Who Have Lost a Sibling
Supporting grief for children, especially your own children is hard-work. Children see death differently, depending on their age.
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Money – Fixing it as a Medical Mum
Money was causing massive stress. I thought if I could get more, I’d fix so many problems as the mum of a medically complex child. So I looked for answers
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Very Special Kids for Palliative Care
Very Special Kids cares for children with life-threatening conditions by providing a children’s hospice and professional family support services.
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Not PTSD – Post-Traumatic Growth
You’ve heard of PTSD – what about Post Traumatic Growth? It changed my life with a child with a life limiting condition & made me functional when he passed.
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10 Ways to Connect With Your Friend After They Have Lost Their Child
The first thing to know about connecting with a friend when they have lost their child, is that everyone is different. Everyone is different. You know this. Every person went through a different journey – that started long before the loss of their child – to bring them to the point that you see them…
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A great therapist – Celeste Clancy
Finding a great therapist for your child is sometimes hard work! Often there is a element of not having a choice. Location, the therapist’s specialisations all play a part. Our first experience Our first community based therapist was assigned to us at random, due to our location. None of my interactions with her went well.…
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Grief while facing a New Year
Who knew as a kid that a New Year would be a cause of further pain & grief? While grieving as I learned to take a day at a time, I was surprised to realise that the idea of New Years & Christmas did intensify the grief. I had heard of people who hated Christmas.…
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Relief while grieving a disabled child
Feeling relief while grieving a disabled child seems like a cold and heartless thing. But when you have witnessed your child in almost constant pain for long enough, this may happen to you. If it hasn’t happened to you, keep in mind that everyday is new, and that emotions and feeling are all over the…
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Medical Definitions – From a Carer
Here are my medical definitions, adding some detail from my experiences. As carers and parents of children with medical conditions and disabilities we learn lots of new terminology. We don’t always catch the meaning the first time we hear them. Acute – A sudden or severe episode/illness that comes out of nowhere. I often said…
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Exercise in the hospital
Doing many admissions with Matthew, exercise in the hospital was the only option. Special needs mum’s need to take care of themselves & exercise is a great step!
The Savage Self-care Coach 