My friends compare this community to the Hunger Games. Our 'unlucky' drawcard landed us together. We need our community & the odds to ever be in our favour.
Tag: special needs parent
Exercise in the hospital
Doing many admissions with Matthew, exercise in the hospital was the only option. Special needs mum's need to take care of themselves & exercise is a great step!
Palliative Care for a Child
Being referred to palliative care for a child can be terrifying, but actually their roll is to help their patients & families get the most out of life.
Special Needs Parents – Hot Marriage Secrets
Special Needs Parents & Hot Marriage Secrets? Are you crazy? I can see the mum now, totally worn out, hasn't thought about dressing up & going out in months. "My marriage hasn't been hot since our honeymoon. Let alone since our special needs child was born." Sure, and you're not alone. Marriage Breakdown as Special … Continue reading Special Needs Parents – Hot Marriage Secrets
Dealing with Death – after you have lost a Child
I never considered before what dealing with death after I lost Matthew would be like. It's Father's day.Today I am mourning another little person gone too soon. I absolutely 100% knew dealing with death of children close to me would happen. But I didn't know how it was going to affect me. Another blow Yesterday … Continue reading Dealing with Death – after you have lost a Child
Relocating for our Medically Complex Child
Relocating for our medically complex child was never just about him. It was never just about Matthew. Between having the idea and actually moving, was around 6 - 8 weeks. Such a strange thing to happen, living in your big beautiful home that you once picked out the colours, tap ware and furnishings for. Then … Continue reading Relocating for our Medically Complex Child