Doing many admissions with Matthew, exercise in the hospital was the only option. Special needs mum's need to take care of themselves & exercise is a great step!
Being referred to palliative care for a child can be terrifying, but actually their roll is to help their patients & families get the most out of life.
Special Needs Parents & Hot Marriage Secrets? Are you crazy? I can see the mum now, totally worn out, hasn't thought about dressing up & going out in months. "My marriage hasn't been hot since our honeymoon. Let alone since our special needs child was born." Sure, and you're not alone. Marriage Breakdown as Special … Continue reading Special Needs Parents – Hot Marriage Secrets
I never considered before what dealing with death after I lost Matthew would be like. It's Father's day.Today I am mourning another little person gone too soon. I absolutely 100% knew dealing with death of children close to me would happen. But I didn't know how it was going to affect me. Another blow Yesterday … Continue reading Dealing with Death – after you have lost a Child
Relocating for our medically complex child was never just about him. It was never just about Matthew. Between having the idea and actually moving, was around 6 - 8 weeks. Such a strange thing to happen, living in your big beautiful home that you once picked out the colours, tap ware and furnishings for. Then … Continue reading Relocating for our Medically Complex Child
The day I realised that being a 'Special Needs Mum' was part of my identity was an interesting moment. I was on the other side of the world, in Cleveland, Ohio. I had packed myself up and taken myself to the other side of the world, to work on me. To learn from someone that … Continue reading Not Just a Special Needs Mum – Getting Yourself Back