There are so many great articles giving advice about caring for a special needs child. A go-bag is one tip that brought me peace in what was often chaos
Ultimately respite for special needs children means someone else will take over caring for your child so you can take a well deserved break from caring responsibilities. The saying 'It takes a village to raise a child' is even more true for a special needs child.
What would I tell myself at the beginning as a parent of a child with special needs? I wouldn't. I might handover a booklet to read when I was ready.
Doing many admissions with Matthew, exercise in the hospital was the only option. Special needs mum's need to take care of themselves & exercise is a great step!
Being referred to palliative care for a child can be terrifying, but actually their roll is to help their patients & families get the most out of life.