The family budget: Today I invited Heather Cox, to share some of her tips and tricks. Heather & Arianna Cox Heather is Mum to two beautiful girls, including Ari who has Sotos Syndrome a rare genetic condition. She started Arianna's Army and is one of the founding members of the Sotos Syndrome Australasia Association. Managing … Continue reading Managing a Family Budget as a Parent of a Child with a Disability
Tag: special needs parent
13 Things A Parent of a Child with Special Needs Should Hear
What would I tell myself at the beginning as a parent of a child with special needs? I wouldn't. I might handover a booklet to read when I was ready.
Knowing My Limits
As a carer, I am often stretched beyond my imaging. But would I know when I had reached my limits? During the bushfires, I learned that answer.
Building Community as a Carer – Why do my friends call this life The Hunger Games?
My friends compare this community to the Hunger Games. Our 'unlucky' drawcard landed us together. We need our community & the odds to ever be in our favour.
Exercise in the hospital
Doing many admissions with Matthew, exercise in the hospital was the only option. Special needs mum's need to take care of themselves & exercise is a great step!
Palliative Care for a Child
Being referred to palliative care for a child can be terrifying, but actually their roll is to help their patients & families get the most out of life.