The family budget: Today I invited Heather Cox, to share some of her tips and tricks. Heather & Arianna Cox Heather is Mum to two beautiful girls, including Ari who has Sotos Syndrome a rare genetic condition. She started Arianna's Army and is one of the founding members of the Sotos Syndrome Australasia Association. Managing … Continue reading Managing a Family Budget as a Parent of a Child with a Disability
What would I tell myself at the beginning as a parent of a child with special needs? I wouldn't. I might handover a booklet to read when I was ready.
As a carer, I am often stretched beyond my imaging. But would I know when I had reached my limits? During the bushfires, I learned that answer.
My friends compare this community to the Hunger Games. Our 'unlucky' drawcard landed us together. We need our community & the odds to ever be in our favour.
Doing many admissions with Matthew, exercise in the hospital was the only option. Special needs mum's need to take care of themselves & exercise is a great step!
Being referred to palliative care for a child can be terrifying, but actually their roll is to help their patients & families get the most out of life.